Dear Friend
I hope you are well and managing to enjoy the sunshine. I’m enjoying working from a sunny room at home with a sleeping dog gently snoring in the background. I’m in awe of those of you who are home schooling or with caring responsibilities or out on the frontline keeping us safe.
I’ve been enjoying chatting on the phone to YCC members about life under lockdown for our next newsletter. If you would like to tell me your story, please get in touch on 07715 217845.
I would also like to hear from anyone who has experienced care from the NHS during Covid-19 so we can publicise the NHS is #StillHereToHelp to encourage people to contact their GP about worrying signs rather than delaying.
Updates in this mailing include:
- Cancer 52 the Voice for Rare and less common cancers have posted the most recent version (18/05/20) of One Cancer Voice (signed off by NHS England) a detailed Question & Answer paper for cancer patients and carers covering Covid and Cancer. Find it at www.cancer52.org.uk or click this link https://bit.ly/2TpnwsU
- The Robert Sinclair Davidson Foundation is a charity which continues to offer regular email updates are cur support during the pandemic to young families and couples affected by life threatening and terminal illness. The age range they cover is 20-50, it’s not means tested, you may apply more than once, there is no upper funding limit and they will consider part-funding. They give grants towards equipment; property alterations and financial help towards mortgage payments/nursery fees etc. Measures that will help people remain in their own homes. It’s easy to apply online www.rsdf.org.uk and if you want further information contact Dr Stewart Manning, a former Leeds GP, who is their goodwill ambassador at stewart@rsdf.org.uk
- I’ve compiled a list of cancer helplines for patients and carers offered by charities and hospitals across Yorkshire and Humber. Please see attached. they are also on our website www.yorkshirecancercommunity.co.uk
- Dr Dominic O’Connor has asked us to share a survey designed to ask pancreatic cancer patients and their carers about exercise. Please see the attachment if it is relevant to you.
- Humber, Coast & Vale Cancer Alliance have asked us to share their Spring newsletter https://hcvcanceralliance.org.uk/wp-content/uploads/2020/05/HCV-CA-Newsletter-May-2020.pdf
- Dr Stuart Flint, Associate Professor at Leeds University, is leading a research study that aims to explore awareness, attitudes and actions of people identified as ‘high risk’ of severe illness from coronavirus by the UK Government. The survey is online and for anyone over 18 years. the link to the survey includes further information, and where people can decide whether to participate: https://leedspsychology.eu.qualtrics.com/jfe/form/SV_1LKb2ubPWebztHL
With best wishes
Jill
Jill Long
Engagement & Communications Officer
Yorkshire Cancer Community
Telephone: 01924 787379
Mobile: 07715 217845